Genetic Support Network of Victoria www.gsnv.org.au

Royal Melbourne Hospital Clinical Genetics www.thermh.org.au/health-professionals/clinical-services/genetic-medicine

Victorian Clinical Genetics Services (includes regional areas) www.vcgs.org.au

Austin Hospital Clinical Genetics Service www.austin.org.au/page?ID=165

Monash Clinical Genetics Service www.monashhealth.org/page/GPs/Outpatients/Genetics_clinic

Centre for Genetics Education (for fact sheets, resources) www.genetics.edu.au

Commonwealth Rehabilitation Services www.crsaustralia.gov.au

BeyondBlue (anxiety and depression) www.beyondblue.org.au

MindHealthConnect   www.mindhealthconnect.org.au


Related support groups:

Muscular Dystrophy Association of Australia mda.org.au

Hereditary Spastic Paraplegia  www.hspersunite.org.au

Charcot Marie Tooth Association of Australia cmt.org.au/index.php

Spinocerebellar Ataxia Australia www.scars.org.au

Spinal Muscular Atrophy Association of Australia www.smaaustralia.org.au

National Ataxia Foundation (USA) www.ataxia.org

FSHD global fshdglobal.org


Resources:

Brainwave Australia supports children living with a neurological condition (0-18yrs) by providing the support they need to improve their quality of life. They help install modifications to support the disability, help families fund vital services such as speech, occupational and physiotherapies imperative to rehabilitation and help provide equipment such as wheelchairs and other mobility equipment designed to make life easier for children living with a neurological condition. You can find out more about Brainwave Australia here >> brainwave.org.au