The aim of this group is to connect people with neuromuscular conditions for informal peer support. We will also hold webinars facilitated by health professionals. Topics can include issues such as: How or when do I tell others about my condition? Will my symptoms get worse? Living with uncertainty about the future. Coping with physical dependence on other people including parents.
This group is open to anyone with a condition affecting the muscles and nerves, such as ataxia, hereditary spastic paraplegia, spinal muscular atrophy, Charcot Marie Tooth syndrome, muscular dystrophy, mitochondrial conditions and other rare conditions of the nerves and muscles.
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